IMFH | Maternal-Fetal Services | Resources | Diagnoses Information
Congenital Diaphragmatic Hernia (CDH): Cherubs
Support group for parents and families of children with diaphragmatic hernia
Center for Loss in Multiple Birth (CLMB)
Support organization for parents who have lost one or more of their children during a multiple gestation pregnancy. Special newsletters cover topics, including “knowing ahead,” by and for parents who have learned during pregnancy that one of their twins or multiples will not live long after birth. “Going longer,” was written by and for parents who are going through the remainder of a twin or higher multiple gestation pregnancy after one of the babies has died in utero.
Congenital Heart Defects
Heart Connection: Support network, providing information and resources for children and adults affected by congenital heart defects.
Gastroschisis: Gastroschisis Exomphalos Extrophies Parent Support (GEEPS)
An international network of families and friends of children born with abdominal abnormalities.
Omphalocele: Mothers of Omphaloceles (MOOS)
Internet support group for families of children with omphaloceles. Includes links to other resources and addresses all facets of the condition.
Spina Bifida Association of America (SBAA)
The Spina Bifida Association of America's mission is to promote the prevention of spina bifida and to enhance the lives of all affected. They promote public awareness, and provide funding for research.
Twin Anomalies: The Twin-Twin Transfusion Syndrome Foundation
Includes information for families during and after pregnancy, research updates, a message board and much more.
